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  • All Survivor Stories Nicole

Nicole

Chronic Myeloid Leukemia Survivor

Homewood, Illinois

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On January 29, just little more than a month after graduating college and weeks after starting a new job, I was sitting in the emergency room waiting to see what was going on. I left work early that day with excruciating pain on the left side of my stomach. While waiting to be called to a room, the thought of cancer never even crossed my mind. I then found out my white blood cell count was at 385,000 when the normal range is 4,000 - 10,000 and the words “leukemia” were said. I felt numb. I had no idea what was to come from this. I didn’t even know what leukemia was, no one in my family had ever had it. After a bone marrow biopsy and days in the hospital, I was diagnosed with Chronic Myeloid Leukemia. I was ready to take on the fight.

After being diagnosed, I was started on 400mg of Imatinib but my white blood cells had increased to 427,000 at my next doctor visit.  My oncologists decided to put me on a stronger dose and start me on Hydroxyurea. After about a week of taking that, my white blood cells went down to 0.3 and my hemoglobin and platelets were dangerously low as well. I was admitted to the hospital for a second time and received countless blood/platelet transfusions and multiple neulasta and nuepogen shots.  Following a rough few days, my counts started to stabilize. I was released from the hospital and put back on the 400mg of Imatinib daily.

After a few rough months, everything has been pretty stable and I can only hope and pray it stays that way.  I’m back to living a semi normal life with just a few adjustments now. I am so grateful for The Leukemia & Lymphoma Society because with their fundraising and research, especially for oral chemotherapy, gives people with cancer, like me, a chance to live a semi normal life. I participated in my first Light The Night Walk this past October, and it was truly an amazing experience. I was overwhelmed with emotion to see how many people have been affected by blood cancers. The love and support from so many different people is an indescribable feeling.  I look forward to getting more involved with LLS and making Light The Night a yearly tradition because I know we can create a world without blood cancers.

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The Leukemia & Lymphoma Society® (LLS) is the global leader and innovator in creating a world without blood cancer. The LLS mission: Cure blood cancer and improve the quality of life of all patients and their families. LLS is focused on accelerating research, providing free support and services, and advocating for policies to ensure access to quality, affordable care.

The Leukemia & Lymphoma Society is a 501(c)(3) organization, and all monetary donations are tax deductible to the fullest extent allowed by tax laws. Please check with your financial advisor if you have more questions. Tax Identification Number: 13-5644916

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